We are Antony and Claire, two former professionals who caught Covid-19 at the end of December 2020 and have been left permanently disabled with Long Covid. Antony has been diagnosed with Post Orthostatic Tachycardia Syndrome (POTs), Dysautonomia, and neutropenia, which has left him immuno-compromised, whilst Claire has a range of debilitating symptoms and is still awaiting a formal diagnosis.
We share what we've learned, signpost other sufferers to help, support and assistance, and we detail our battles with clinicians and authorities to be heard, and to secure the benefits and help we and others are entitled to. We also share the personal accounts of other sufferers both in the UK and globally, so that you can feel validated and heard. If you have a story you'd like to share, please reach out to us, and if you're stuggling, know that we hear you; there is help available, and we WILL help you to navigate the system. There is hope for all of us.
So, who are we?
Antony, 54, has had a long and varied career that encompassed periods as a soldier, Metropolitan Police officer, city broker, best-selling author, journalist, photographer and ghost writer, CEO of the UK arm of a Chinese multinational, and more latterly, as lead investigator for SCPS at London Gateway port . He is the author of a number of Sunday Times Bestsellers, including Blue Sky Warriors, Sweating the Metal , Force Benedict and My Outdoor Life, which he ghosted for Ray Mears. He was diagnosed with Adult ADHD in 2018, and in 2018, he became an altuisitc kidney donor. He used to enjoy flying, motorbikes, travelling, cooking and current affairs. Now, he runs this website with Claire, is step-dad to Fleur (12) and he advocates and campaigns in the UK for #LongCovid recognition, research and rehab.
Claire, 52, is a qualified nurse who spent several years working in a busy A&E department (or 'ER' for our American friends) at an NHS hospital in Essex, before doing a further degree and qualifying as a health visitor, where she visited expectant and new parents, giving support and health advice, as well as performing clinical health checks for mums and babies. She is a mum of four (three grown-up children and a 12 year old daughter, Fleur). Earlier this year, she and Ant became grandparents for the first time when their grandson was born in May. Now, Claire spends her time recovering from Long Covid, running this website when she's well enough, and being a mum to Fleur.